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THE ASSAM GAZETTE
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EXTRAORDINARY
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PUBLISHED BY THE AUTHORITY
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No. 639 Dispur, Thursday, 22nd September, 2022, 31st Bhadra, 1944 (S.E.)
GOVERNMENT OF ASSAM
ORDERS BY THE GOVERNOR
HEALTH & FAMILY WELFARE DEPARTMENT
NOTIFICATION
The 8th September, 2022
No. HLA 518/2021/12.- The Department of Health & Family Welfare, Government of Assam has launched the "Thalassemia Support Scheme"- a health care initiative for children with Thalassemia. Under the aegis of this scheme financial assistance and other support will be provided for treatment of children below 14 years of age, diagnosed with Thalassemia.
Eligibility :
All children residing in Assam, who are below 14 years of age, with family income less than Rs. 5 Lakhs per annum will be eligible for this scheme. However, in exceptional cases, the income limit may be relaxed after due consideration at the highest level of authority.
Scope :
Considering the significant prevalence of Thalassemia and especially among under privileged population of the state, the following support for comprehensive management of Thalassemia patients including diagnosis, follow up tests, and treatment are proposed :
Main features of the Scheme:
1. Testing for Haemoglobinopathy in children with significant and persistent Anaemia, especially those with family history.
8948 THE ASSAM GAZETTE EXTRAORDINARY, SEPTEMBER 22, 20225. Reserving 2 beds each in District Hospitals and 4 beds in Medical College & Hospitals to facilitate easy and safe access to blood transfusion / chelation facilities for Thalassemia patients, during their routine visit, as they are easily prone to infections.
6. Financial assistance for Thalassemia patients, who require Bone Marrow Transplant, will be provided under the Snehasparsha Scheme being implemented by National Health Mission, Assam as per suitability.
7. Specialised Surgery/Splenectomy for those who are not fit for bone marrow transplant, to be made available in all Medical Colleges Hospitals free of cost. The concerned medical college authority may submit the bills to National Health Mission, Assam, for reimbursement under Snehasparsha scheme .
8. Thalassemia Patient's card will be provided to each patient. A portal for registration of Thalassemia patients will be created by AMTRON or under Digital Health Mission or a separate central portal will be maintained by Assam State Blood Transfusion Council (ASBTC) for registration of all Thalassemia patients and issuance of patient card so as to ensure smooth follow up and blood transfusion.
9. Transportation and Miscellaneous Assistance to the guardians of Thalassemia patients till a patient completes 14 (fourteen) years of age will be provided from Assam State Blood Transfusion Council. Financial assistance of Rs 10,000/- (Rupees ten thousand) annually, to be provided on half yearly basis @ Rs. 5000/- (Rupees five thousand) to the registered beneficiaries through Direct Bank Transfer.
10. Special Voluntary blood donation drives/camps will be conducted in Government/Government supported blood centers regularly for catering to the blood requirement for Thalassemia patients. ASBTC already provides a grant of Rs. 5000/- (Rupees five thousand) for each voluntary blood donation camp.
Thalassemia Support Committee:
The decisions regarding the scope of the scheme, admissibility and implementation of the scheme will be taken by the Thalassemia Support Committee, consisting of the following members :
1. Secretary, Health & Family Welfare Department --- Chairperson
2. Mission Director, National Health Mission --- Member
(or representative)
3. Director of Health Services, Assam --- Member
(or representative)
4. Director, ASBTC (or representative) --- Convenor
5. Addl. Director of Medical Education, Assam --- Member
6. Principal cum Chief Superintendent GMCH --- Member
7. Superintendent, Gauhati Medical College & Hospital --- Member Secretary
8. Professor & HOD, Haematology, Gauhati Medical --- Member
College & Hospital
9. Blood Bank I/c, Gauhati Medical College & Hospital --- Member
The Committee may appoint designated coordinators from each Medical College & Hospital and District Hospitals for smooth implementation of the Scheme throughout the State.